One month after the operation
It seems the operation
Was just yesterday
Time has flown by
And my new body is here to stay
I’m walking fast and
All this strength is going to last
Physically and mentally I’m at
The highest point I’ve ever been
I look outside and all I see
Are all these positive things
Trees,flowers,and all these little animals
Forests and mountains and everything beyond it
Walking at a fast pace with a smile on my face
One sleep till the operation
Wow tomorrow morning
Is the day everything will change
A new body is being delivered
In pain when I wake up
But not for long because
The drugs will take effect
And the pain will subside
The days will fly by
Recovery is fast
The pain won’t last
And nothing hurts anymore
I feel kinda free
I’m the kid I was used to be
Reflection time
The operation is one month away
But I don't know what I'm supposed
To feel or say, is that strange?
Or is it just okay?
When the day arrives I won't know what to say
I will just hope for change and better days
It's been 12 years with its highs and its lows
I never said it was easy, but wow how I've grown
Grown physically, mentally, and spiritually
So many positive things and that I know!
I know it now and I will know it in the future
Bravery is not something that will change
With the weather, it will stay with me forever
Yes this was hard but man am I proud
Of my growth and evolution through
All this bullshit with this evil bitch
You have been by my side on this long journey
You are not an acquaintance, you are part of my family!
I thank you for all you have given me
But it's time to say goodbye
So that I can move on with my futur life
A new escape
You think that arthritis is something
You can just escape by running far away
A change of scenery but not really
Because the shadow is still there
Lurking around in the air
This week is the hardest of the month
Cold showers or taking drugs
But none of that works because
I am not the one who holds the power
My shadow has it and he's looking down
At me from a big tall tower
You’re in pain after a couple of hours at school
Sorry I forgot that I made up
This imaginary disease in my head
And for what, for fun of course!
Yes because I really love being in pain!
So much pain that I cry sometimes
Actually, I was diagnosed with
A thing called arthritis 3 years ago
And yes this is not a joke
I'm 18 and I have arthritis
It's great to hardly be able
To do any sport
It's great to fail exams
Because I can't concentrate
Really it's everything I have ever wanted
And yes my pain is all fake
I just invent it all so that you pity me
I invent it on purpose so that I can't
Do the things I love
Pain
In so much pain
But there's no one to blame
It's just a disease called arthritis
That's breaking my body
And driving me insane
Dad thinks everything's okay
Because from the outside
I look like a normal 18-year-old
But on the inside, my body is burning
There are invisible bruises on both of my legs
A fire takes control
And won't leave me alone till it hurts me well
Wings
I have wings
They are not visible
But they are still very useful
Our wings are these little things
That help us out every day
From medicine to CBD to memory foam cushions to
Our stuffed animal that we keep on hugging
All these things may seem small
But they all help in some way for sure
Some may work better than others
Depending on the person
But don't give up, just keep on searching
You will find that thing that you can
Count on like it's your twin
Until then keep you're head high
And keep on fighting
We're chronic pain warriors after all
We're one giant community
We don't all have the exact same thing
But we all know for sure
How this pain is debilitating
My poems
To some, my poems may seem sad
But for me, they're my only chance
For people to hopefully understand
That my pain is not something I can control
I can not decide when it comes or when it goes
If it's strong or if it's low
I live it and hide my emotions
So that nobody will notice
When my pain level is a 9 out of 10
And I feel my body caving in
I say everything's fine and
I keep lying because you
Just get used to it after some time